Congenital Heart Disease - Tetralogy of Fallot

[bibik8]

Hi all. My 6 week daughter was diagnosed with Tetralogy of Fallot. I was told that QMH is the best, both public and private wise. Would anyone share their experience with QMH specifically for heart disease cases?

1. What are the check ups like?
2. Are you doing anything extraordinary before surgery? (We are told not to let her cry too much and not to fatten her up too much)
3. Was surgery the only option? Unable to let the hole close on its own?
4. When did your child get surgery and what was it like?
5. How is your child post surgery? Any follow-ups, additional medication?

Need some enlightenment and guidance and prayers

Many thanks!

 

[KFly]

Hi there. My daughter was diagnosed with a 2.5mm VSD at 2 weeks old. The paed found a heart murmur at the week 1 check up and we had echo tests/ultrasound/ECG etc. at 2 weeks old (with Carmen Tam at central health who was very good). It's only small and it looks like the hole is closing on its own. We have another check up next week so fingers crossed. Anyway, I am sorry I can't give you any information about QMH but I just wanted to reply to say I am thinking of you. It is terrifying and incredibly distressing to find out that your little one has a congenital heart defect. It was hard enough dealing with the aftermath of childbirth. I really hope she is ok and that you get the support you need.